SUSHEG JIVITH NEURO CARE
…… Residential Care for Dementia And Other Neurological Illnesses
RESIDENTIAL CARE
Providing residential care to dementia patients, especially those battling Alzheimer’s disease (AD) is the primary objective of Susheg Trust. Our country has been severely lacking in providing care for people with dementia and similar diseases.
India has over four million people suffering from dementia, a majority of them with Alzheimer’s disease (AD) characterised by loss of memory and disorientation in early stages. The number is likely to double by 2030. Still, there are hardly any institutes providing care for these people. They are mostly allowed to be taken care of by loved ones and family members, the burden often falling on one person from among them. Even coastal districts of Karnataka that have hospitals, nursing homes, psychiatric institutions, old age care, homes for destitute and the homeless do not have a single bed for those with dementia.
Susheg Trust, from its inception, considered providing residential care under professional supervision as the need of the hour in order to ensure the dignity of every person who is battling this disease.
Dementia is a group of diseases of the brain whereby the brain loses it’s ability to function. Alzheimer’s disease is the most common among them, accounting for over 60% of all dementia patients.
AD is a disease that causes brain connections and cells to degenerate and die, causing destruction of memory and other functions of the brain. Loss of memory and disorientation are the first signs of AD. It is a progressive disease that worsens with time. AD has no cure. Exact causes of the disease are not known. Named after Dr. Alois Alzheimer, who was the first to recognize and write about it, AD affects brain functions, including memory, behaviour and reasoning.
Though AD is incurable, it is possible to slow down the progression of the disease and take care of some of the symptoms with medications and other cognitive behavioural interventions, thereby attempting to enhance the quality of life in those diagnosed with it.
Caring for people with AD is a daunting task. In addition to lack of memory, the patients lack hygiene, remain disoriented, fail to recognize people, places and objects, display irritability and aggression and wander around. It is a round-the-clock task for the caregiver without respite.
Lack of respite, constant vigilance, inability to have any private time, being locked at home with patient year after year, takes a toll on the mind and body of the loved ones caring for the patient. Worst of all is witnessing the steady deterioration of the person who only a few years earlier was probably the home-maker, bread winner, the head of family, a mother and the go-to person whom you turned to for advice, help and solace. The patient suffers… the care giver suffers even more.
Understanding the need to provide professional care for the patients and respite and solace for their loved ones, Susheg Trust commenced its humble endeavour by deciding to build a residential care facility at Manjanakatte, in rural Mangalore, on an acre of land donated by the author of the Trust.
The facilities include spacious rooms, nutritious food, 24/7 Nursing care, medical assistance by visiting physicians, symptom relief, neuro-psychological stimulation, physiotherapy, recreation and a garden.
Provision for partner/loved one to stay with patient too is planned.
Professional residential care benefits the patients in many ways compared to home care. The nurses and nursing assistants are trained to manage the patients. Mental stimulation, physical exercises, recreation, availability of open space help mitigate patient anxiety and frustration. Visiting psychologists and geriatric specialists provide guidance on neuro-care and diet. The place is secured to prevent wandering. While the disease cannot be cured, the deterioration can be stemmed to some extent and the patient can live with respect and dignity.
The relief to the caregivers and loved ones is even more. Bringing a person one loved to a care facility may hurt to begin with. The peace of mind that follows that the loved one is in safe hands, outweighs the hurt.
Dementia patients are upset by noise, visitors and change in surroundings. A place away from the city in a serene environment, clean air and availability of open space will help them in more ways than one.